Child With Rare Disease Dies Right Before Christmas

Child With Rare Disease Dies Right Before Christmas


Beandri Booysen, a South African teenager who courageously battled Hutchinson-Gilford progeria syndrome, a rare genetic disorder that caused her to age rapidly, has passed away at the age of 19.

Progeria, often referred to as “premature aging,” accelerates the aging process in children. Beandri, who weighed only 12 kilograms despite her age, experienced the equivalent of eight years of aging for every year she lived.

Despite facing numerous health challenges, including osteoporosis and heart complications, Beandri defied expectations. She underwent open-heart surgery just two months ago and was determined to celebrate Christmas with her family.

A Life of Resilience and Inspiration

Born with a condition affecting only one in four million babies, Beandri was one of the few individuals worldwide living with progeria. She became an internet sensation, inspiring millions with her positive spirit and unwavering resilience.

Beandri openly shared her experiences and challenges on social media platforms, using her platform to raise awareness about progeria and other rare conditions. She emphasized the importance of embracing individuality and celebrating differences.

A Legacy of Hope

Beandri’s mother, Bea, confirmed her daughter’s passing on social media, expressing gratitude for the global support and love Beandri received throughout her life.

Beandri’s legacy will continue to inspire others to embrace life’s challenges with courage and hope.



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